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Resources for Families and Individuals | National Tay-Sachs and Allied Diseases Association (NTSAD)

2001 Beacon St, Ste 204, Boston, MA 02135

Eligibility

Open to all

Required documents

Required documents may include: Proof of Identity (ID, birth certificate, passport) Proof of Address (utility bill, lease) Proof of Income (pay stubs, tax returns) Medical, educational, and legal documents Insurance, government assistance, financial, and employment records Child support, disability, immigration, and veteran status Social Security, tax, and housing records Emergency contacts and community service documents

Hours

24 hours a day, 7 days a week Call for information regarding specific program information Office Hours Mon - Fri 9:00 am - 5:00 pm EST
https://ntsad.org/support-for-families/resources-for-families-and-individuals/
[email protected]

Interpretation services

English

Application process

Must completed the First Connections form - NTSAD

Service area

United States

Description

Provides practical information and tools to help cope with a rare diagnosis. Offers support services to individuals and families affected by these diseases such as talk support groups, developing care plans, providing care tips, research and clinical trial information.

Providing organization

National Tay-Sachs and Allied Diseases Association (NTSAD)

Offers information, resources, and support to individuals and families affected by Tay-Sachs, Canavan, GM1, and Sandhoff diseases. Supports research, carrier screening, prenatal testing, and raise awareness of rare genetic diseases.