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Resources for Families and Individuals | National Tay-Sachs and Allied Diseases Association (NTSAD)

Provides practical information and tools to help cope with a rare diagnosis. Offers support services to individuals and families affected by these diseases such as talk support groups, developing care plans, providing care tips, research and clinical trial information.

Physical Address

2001 Beacon St, Boston, MA 02135

Hours

24 hours a day, 7 days a week; Call for information regarding specific program information; Office Hours Mon - Fri 9:00 am - 5:00 pm EST

Application process

None to access website; private group participation requires completed First Connections form available on website

Eligibility

Open to all

Service area

United States

Agency info

National Tay-Sachs and Allied Diseases Association (NTSAD)

Provides information, resources, and support to individuals and families affected by Tay-Sachs, Canavan, GM1, and Sandhoff diseases.